Addressing Executive Function by Amy Orlando
For my leadership project I developed a website focusing on simple strategies that individuals can use to address executive functioning difficulties. My motivation behind making this website was that I felt like there are a lot of websites dedicated to helping people improve their executive functions. However, there is less information on accommodations/ strategies that individuals can use in the moment in order to be as independent and productive as possible in their daily lives.
This website is intended to be used by parents, professionals as well as adults who are struggling with executive functioning difficulties. It has a couple of different elements. First, it takes the user through key terms and an explanation of executive functioning. From there, the user decides which of the eight areas they want more information on. Under each specific executive function tab there is 3 distinct pieces of information:
- The accommodation category being suggested along with an explanation of why I choose that accommodation
- Low tech” accommodation suggestions
- High tech” accommodation suggestions
In addition, each “low tech” and “high tech” accommodation will have a suggestion for lower functioning and younger students.
Finally, there is a tips and tricks tab and a contact me tab. The tips and tricks tab gives suggestions on how to incorporate these accommodations into the users daily life. The contact me tab has a Google Form so I can be contacted with any questions or feedback.
I plan to share my website with my administrators at my school and with all the parents and individual clients I work with. My hope is that people use my website in order to find accommodations that will help them improve their daily functioning.
How COVID-19 is affecting students with disabilities? by Madison Ferrell
The idea for this project came about when COVID-19 started and schools had to close down. For me at the time, there was not a big impact and I was able to work from home. On my last visit with my mentoring family, I began to think about how hard it was on my family and the struggles they were facing. At that time I was preparing to become a teacher and jump into this new world of virtual learning. I decided to dive into how to help students with disabilities to overcome the obstacles of virtual learning and figure out how to make the transition easier. I began asking questions to my mentoring family, both parents and students, about the struggles they were facing. From this I was able to talk to various families and some educators, who wished not to be named in my project. From this I developed a presentation to talk about my findings and offer some suggestions from an educator on how to help the students and parents navigate this new setting. I hope that the resource sheet might help some during this learning curve, what matters is the student is able to have some type of normal routine and not feel so isolated.
The Benefits of Sensory Play in Schools for Students with Autism and Related Disabilities by Dever King
Children with autism often have difficulty using effective communication, socializing with others appropriately, and difficulties understanding others. These deficits make it difficult for children with autism to find success in the classroom without the appropriate supports in place. 1 in 59 children have been diagnosed with autism spectrum disorder and it is 4 times more common in boys than girls. Sensory based approaches can be used to meet the needs of children with autism. However, it is important that providers utilize evidence-based practices when implementing sensory based approaches with children with autism.
Trauma and Early Childhood Development by Andrea Muffly
Learn how trauma impacts early childhood development and gain new tools to use with clients. In Part I, participants learned how chronic stress impacts brain development and creates pathways built for survival. In Part II, participants will learn functional strategies they can implement with the families they serve. Participants will learn how to address trauma within their roles as early interventionists as well as practical strategies to use with the families.
Two-part webinar series hosted through Talks on Tuesday Webinars, available for viewing and continuing education credit hours at: https://www.veipd.org/main/sub_2020_talks_tuesdays.html
Implementing An Exercise Program At A Day Support Program by Alexa Shulleeta
Children and young adults with developmental disabilities are less likely to participate in physical activity with most not meeting the recommended physical activity guidelines. Furthermore, physical activity participation continues to decline as an individual ages with only 17.5-33% of adults meeting recommended guidelines. Individuals with developmental disabilities are at high risk for experiencing co-morbidities such as obesity, cardiovascular and metabolic health conditions, and are at a high falls risk. Physical activity and the promotion of a healthy lifestyle result in positive outcomes both physically and emotionally. Based on this information, I decided to implement an exercise program at my sister’s day support program, Maxwell’s Place LLC. The program director expressed difficulty finding activities that everyone could participate in due to the varying functional levels. Their clients have a range of disabilities and diagnoses including hearing/visual impairments, cognitive impairment, coordination deficits, and use of assistive devices. I designed an exercise program that focused on strengthening large muscle groups as well as address balance that would work for a group of 22. All the activities can be modified for individuals that use a walker or cane. I also included large pictures so those that are hearing impaired can reference the picture instead of listening to instructions. I plan to attend the program to assist with directing of the exercises the first time to help problem solve best room set up to ensure safety of all clients and employees. By providing a comprehensive, yet simple, exercise plan Maxwell’s can continue to implement the program on a daily basis, which will benefit all the client’s in the long term. The exercises are also easily adaptable to accommodate any new clients they receive.
Post-Secondary Success Stories: Perspectives of Adults with Intellectual and Developmental Disabilities by Kathrine Brendli & Lindsay Kozachuk
Our leadership project presents the results of a qualitative research study that investigated the post-secondary experiences of adults with Intellectual and Developmental Disability (IDD). People with IDD report low employment rates and low higher education rates, as well as poverty rates almost double that of the general population. However, recent focus on positive psychology and self-determination theory highlight the strengths and achievements of those with IDD. With a positive psychology and self-determination theory lens, we interviewed three adults with IDD who experienced success in at least one of three areas: employment, post-secondary education, and independent living. Through their stories, we sought to find what supports, incidents, and people do they believe were helpful to their successes after high school. We found that several evidence-based practices were important to our participants’ successes in each area. We also identified several themes which included: challenges faced, self-advocacy, ability over disability, more alike than different, and benefits of post-secondary education. In our presentation, we will discuss the details and findings of our study as well as our plan to inform the public on the possibilities that inclusion brings when people with IDD are welcomed into the workplace, higher education, and independent living situations.
Mental Health & Post-Secondary Transition for CLD Students with Disabilities by Amber Ruiz
Culturally and Linguistically Diverse (CLD) students with disabilities are having a growing number of adverse school-related issues and mental health issues, such as expulsion and trauma (Koyanagi & Alfano, 2013; Trainor et al., 2019; US Department of Education Office for Civil Rights, 2016). The collaboration on mental health during post-secondary transition planning is essential because CLD students with disabilities are at an increased risk of mental health issues, which could impact their ability to maintain employment, pursue further their education, and live independently. The purpose of this review is to understand the current interventions and practices of special education teachers and VR counselors' collaboration on mental health with the ability to support (a) social, (b) emotional, and (c) behavioral aspects for CLD students with disabilities during transition. This systematic review will be used as a resource for service providers, teachers, researchers, and students.
Effective Use of Language-Supportive Strategies to Support Child Language Development by Erin Stehle
This leadership project focused on educators and parents use of language-supportive strategies to support child language development in pre-kindergarten and kindergarten. A systematic review of the literature reported the following four strategies to have significant and positive associations with growth in child language development; (1) modeling (direct modeling and vocabulary modeling), (2) expansion, (3) wh-questions (open-ended and close-ended), and (4) scaffolding (generalizing, reasoning, predicting, co-participating, and reducing choices). I created an in-depth power point explaining, defining, and providing the research behind these four strategies. Alongside the research I created video clips of how to effectively implement these four language-supportive strategies during shared book reading for parents and literacy time for educators. I provided videos of ineffective implementation of these strategies to provide parents and educators examples of common errors when using language-supportive strategies as well as a comparison to the effective implementation. I disseminated the PowerPoint and videos to 10 kindergarten educators as well as five pre-school parents. Additionally, I provided flashcards for the parents and educators with examples of each language-supportive strategy as a quick reference tool. Due to unforeseen circumstances, I was unable to provide an in person coaching session for the 10 educators. However, all educators and parents have the PowerPoint as well as the videos and flashcards and plan to pass them forward to friends and school personnel. This leadership project aimed to provide educators and parents with tools and references that they can return to in order to ensure they are frequently using language-supportive strategies to create a rich language environment for their children in the home and school.
Children with Disabilities and Nutritional Challenges by Fiorella Kimbrough
This presentation is focused on the nutritional challenges that children with disabilities experience. The presentation will talk about the most common nutrition challenges and how does this affect their health. This leadership project is intended to provide useful information to parents experiencing this problem with their children, it is hoped that parents in the community can benefit from this information and use this a guide to provide a better healthy lifestyle for their children. We will discuss common nutritional challenges, some of these include, obesity, underweight, picky eaters, medication side effects, genetics, and others. Because we want this presentation to be used as a resource for parents with children with disabilities, nutritional tips will be shared during this presentation. I have also created a brochure that contains this information in English and Spanish, the brochure can be distrusted to parents and professionals working with this population via e-mail on the time being. The brochure, in addition, will include a list of resources that can be helpful to guide parents on where they can receive more professional guidance, resources, and information in general about this topic. Some of the resources include the child and adult care food program, Virginia Special Supplemental Nutrition Program for Women, National school breakfast and lunch information, and Children’s Hospital of Richmond at VCU (CHOR). It is hoped that parents and helping professionals can use this brochure as guided of information to learn more about nutritional challenges and help maintain a healthy lifestyle for children with disabilities.
Digital behavioral measurement tools to assist in the diagnosis of Autism Spectrum Disorder (ASD) by Jehya Chelliah
The Diagnostic and Statistical Manual of Mental Disorders (Fifth edition) (DSM-V) sets forth criterial for diagnosing Autism Spectrum Disorder (ASD). For the past several decades ASD has been diagnosed by qualified trained professionals in clinical settings. These clinical observations have been developed into specific screening tools and diagnostic methods for ASD. Because of variability in symptom type, severity, diagnostic decision-making, evaluations are performed by multi-member diagnostic teams which can be overwhelming for patient and their families. Other major drawbacks of this protocol is that it is based on caregivers’ answers to a long questionnaire which leads to delay in receiving a diagnosis or to parents dismay they receive a mistaken diagnosis for a different disorder like Attention Deficit Hyperactivity Disorder (ADHD) . To overcome these hurdles researchers have explored digital measuring tools to do an objective rather than subjective clinical observation to predict ASD. My leadership project examines Artificial Intelligence (AI) technology to assist in the diagnosis of ASD to improve patient and family experiences. I will create an informational brief for schools and families to highlight this emerging technology in the diagnosis of ASD.
Case Manager Perspectives of Factors Contributing to Turnover and Retention by Julie O'Brien
Introduction This study examines the views of case managers on factors that contribute to turnover and retention. The researcher hypothesized that compensation and caseloads would emerge as prominent factors in case manager reports.
Background Case managers support individuals by providing connection to and monitoring of needed services. People with intellectual and developmental disabilities are utilizing case management services at increasing rates. At the same time, organizations that employ case managers are struggling to recruit qualified candidates, and the case management workforce is experiencing high rates of turnover. This mirrors a crisis in the workforce of direct support professionals, with the potential to significantly negatively impact the consistency and quality of services and supports for people with intellectual and developmental disabilities.
Methods The researcher performed qualitative analysis to examine data gathered through in-person interviews with 5 case managers in central Virginia from 2017 to 2018. Audio recordings of responses to questions related to case manager turnover and retention were transcribed and thematic analysis of the resulting text was conducted.
Results Case managers reported multiple contributing factors to turnover and retention. Reported factors associated with turnover were high demands, including caseloads and paperwork; lack of support and understanding from management; low compensation; and lack of upward mobility. Reported factors associated with retention were benefits and rewarding work.
Limitations This research is limited by the small data set and by the potential impact on case managers of changes to the state’s intellectual and developmental disability service system during the period in which interviews were conducted.
Conclusion Future research should expand on this work to examine a wider population of case managers. At the state and organizational level, the identified factors may serve as avenues to reduce turnover and increase retention. Addressing these areas can positively impact both those providing case management services and the quality of services received by individuals with intellectual and developmental disabilities.
Understanding Your Role in Infant Mental Health by Kelsie Browning-Varga
Through my experience in LEND, I learned about an opportunity to take courses about Infant Mental Health. Unfortunately, due to my schedule, I wasn’t able to attend the courses, but I still wanted to learn more about what infant mental health was. Mental health is such a large topic in today’s society, but I had never heard about infant mental health being an issue. As I have learned more about the subject and how it relates to the relationships and attachment an infant forms with family and/or caregivers, I realized that my role as a physical therapist can be crucial to helping facilitate a healthy relationship by providing families through movement and other activities, especially in infants with severe disabilities. From this interest, my leadership project was born. The purpose of my leadership project is to help healthcare providers understand infant mental health and the role their profession plays in promoting health family relationships. Through implementing my leadership project, I want healthcare providers to be able to recognize the risk factors that can contribute to abnormal bonding between an infant/child and their caregivers, understand how they can play a role in fostering health attachment, and what services/providers they can reach out to and offer to families. My original plan for implementation was through facilitating a round table discussion at the MCHB Making Lifelong Connections conference, however due to COVID-19 concerns, the conference was switched to an online format and my portion was not included. Therefore, I am actively looking for additional opportunities to implement my project, which may include an inservice to outpatient physical therapists at Children’s Hospital of Richmond. I believe that as a Maternal and Child Health providers, being able to understand infant mental health and how to promote healthy relationships is essential to help build a family-professional relationship, especially working with the community with a wide range of cultures and views on disability.
Occupational Therapy & Virginia Treatment Center for Children by Kim Rahimian
Purpose: In collaboration with occupational therapists at VTCC, I created supplemental materials to enhance the overall outpatient OT clinic environment. These materials were used to support diverse patients and families in the community to meet their goals in occupational therapy.
Objectives:
- Create a product with visual schedule aids
- Create and design products that support the development of patients’ self-regulation skills
Implementation: VTCC is a pediatric psychiatric facility that offers inpatient and outpatient services to children and their families. In recent years, the VTCC has made the transition to a brand new facility, where the outpatient occupational therapy team is continuously finding ways to create a therapeutic environment that is safe and engaging for patients and their families. One way to create a therapeutic environment includes creating and designing products with end-users in mind: children and adolescents with mental health and neurodiverse disabilities. In the fall of 2019, I created a binder full of visual aids and schedules for all patients that utilize the outpatient OT setting. This was introduced to current OTs and then used by pediatric clients to facilitate more organized and autonomous therapy sessions. In spring 2020, I developed two more resources to help the outpatient OT team in creating and sustaining a more engaging clinic environment. Although I couldn’t physically implement these two resources due to the global pandemic, I was still able to virtually collaborate with the VTCC outpatient OT team. These two environmental resources focused on providing VTCC patients with sensory-based strategies and self-regulatory techniques as they navigate and explore the outpatient OT clinic.
Outcomes: I was able to create and design three products for occupational therapists at VTCC to use to help their patients. With the first product (visual schedule binder), I was able to implement strategies with some patients and observed how this empowered clients to better organize and make decisions in their own treatment sessions. Other outpatient OTs also commented on how the visual schedule binder was a great start at providing visual aids to their clients as well, particularly when given multiple therapeutic options. While I was unable to fully implement two out of the three products in person due to the global pandemic, I was able to virtually send project designs and instructions to the outpatient OT team to implement in the future.
Supporting Social Work Students with Hidden Disabilities in Field Practicum Settings: Recommended Practices by Lynne Fetter
This research assessed how social work field education faculty work to accommodate students with hidden disabilities in field practicum settings at schools of social work of varying sizes around the United States. A qualitative survey was sent to a listserv of field educators (n=22). The researcher performed a simple thematic analysis, grouping codes into overarching themes. Overall, 6 major themes emerged from the data: 1) the importance of student self-advocacy, 2) the need for open communication and collaboration among field agencies, instructors, faculty, and students, 3) challenges around student management of disability 4) ableism in field settings, 5) the importance of planning ahead for a successful field practicum experience, and 6) field agency/instructor considerations. This research begins to fill a gap in the literature on best practices for supporting social work students with hidden disabilities in field practicum settings. Implications are discussed.
Lessons Learned: COVID-19 and Virginian’s with Neurodevelopmental Disabilities by Rebecca S. Herbig
The purpose of this project was to create a short, user-friendly policy brief regarding lessons learned during the COVID-19 pandemic as relate to Virginians with neurodevelopmental disabilities. On the average day, Virginians with neurodevelopmental disabilities are at risk of abuse, neglect, exploitation, and health complications. A worldwide pandemic stretches the system to a point where these risks are much higher, including an increased risk of both social and institutional discrimination. There are lessons we can learn from the current health crisis to better prepare for the next crisis or even later during this pandemic.
Virginia must be prepared to both protect those who are the most vulnerable while also ensuring that the limitations placed on everyday life do not have an adverse impact on the health and rights of the same individuals. Virginians with neurodevelopmental disabilities can live and be active in many places. They may live independently or with family. They may also live in permanent supportive housing, group homes, intermediate care facilities (ICFs), assisted living facilities, nursing homes, hospitals, state-operated training centers, jails, or be homeless. They may work or participate in day programming. The policies related to many of these potential programs come from different agencies and are inconsistent with one another.
This policy brief exposes the weaknesses of the policies affecting Virginians with neurodevelopmental disabilities with data and anecdotal information. It also provides recommendations as to policy changes that would better prepare Virginia in the event of another state of emergency. Finally, it discusses and applauds the policy changes, guidance documents, and advocacy groups that have come out during the COVID-19 pandemic thus far to ensure that the rights of Virginians with neurodevelopmental disabilities are not threatened.
22q at the “Virtual” Zoo by Jordyn Prell & Rebekah Zee
22q is a genetic condition caused by an extra or missing piece (a deletion or duplication) of one of our chromosomes, which hold our genetic material or DNA. People affected with 22q can experience a variety of health problems, such as heart defects, palate differences, growth and developmental delays, immune system issues, feeding problems, and a wide array of behavioral and emotional issues. 22q is the most common deletion/duplication syndrome, affecting about 1 in 4000 people.
The International 22q Foundation was started over 15 years ago to spread awareness of this condition. The foundation organizes several awareness events throughout the year, including 22q at the Zoo. 22q at the Zoo is an awareness event meant to bring families, friends, and professionals together in order to network, socialize, and raise awareness for 22q. 22q at the Zoo is an event that is organized at hundreds of zoos around the world each year. This year, due to the ongoing health pandemic, 22q at the Zoo is a virtual event. We are participating by providing ideas for virtual zoo tours, activities, and ways to spread awareness of 22q without leaving your home.
Preparing Chinese Welfare Centers for Caring for Children with Disabilities by Shuyi Wang
In partnership with Shepherd’s Field Children’s Village (SFCV), a disability-advocacy institution in Tianjin, China, the primary goal of this project is to use the information gathered from a range of disciplines to generate an initial assessment of therapy needs of state-operated welfare centers across the country where majority of the country’s orphaned children reside.
SFCV is actively transitioning into the role of a therapy education provider for the state-operated welfare centers in order to help them provide necessary physical/occupation/speech therapy for children with special needs in order to optimize their functional ability and independence. The program director requested an evaluation tool to better understand the needs of the local welfare centers. The project began with gathering input from SFCV staff members as well as contact persons at several local welfare centers. Following structured interviews and observations of on-site training sessions, a final draft was produced. Important features of the evaluation tool include consistent 0-2 rating of facility environment such as equipment and accessibility as well as staff’s knowledge in various therapy domains including positioning, transfers, dressing, toileting and bathing, balance and gait training. This evaluation will improve SFCV’s ability to better cater their training to the specific needs of individual welfare centers based on the facility environment and staff knowledge.
The secondary goal of this project is to organize a continuing education course at SFCV for staff members from various welfare centers across China. The course was originally scheduled in May but had to be cancelled due to the COVID-19 restrictions. In collaboration with a team of PTs and PT students, this project provided SFCV with instructional materials and travel logistics for the event when circumstances allow.